Faculty Profile: Susan Allen, PHD, AM

Susan Allen
Susan Allen, PHD, AM
Professor of Health Services, Policy and Practice
Program in Public Health
Work: +1 401-863-3818
Dr. Allen studies community based long term care for older and middle aged people with chronic conditions and disabilities. She is particularly interested in policies and novel models of community based care designed to decrease reliance on institutional settings. She is currently investigating the individual,organizational and market factors associated with maintaining community residence among veterans discharged from rehabilitative care in VA nursing homes.

Biography

Dr. Allen is Professor of Medical Science and Sociology in the Departments of Community Health and Sociology. She is also Associate Director of the Center for Gerontology and Health Care Research at Brown, and Associate Director of the VA Center on Systems, Outcomes and Quality in Chronic Disease and Rehabilitation (VA HSR&D REAP). Dr Allen has a long history of studying home care issues among people with disabilities. Her research focuses on both formal and family care, as well as technological assistance as a third home care resource. She is currently PI of a study funded by a Real Choice Systems Change grant to the RI Medicaid program to evaluate the effect of Rhode Island's efforts to expand options for community based care, including deinstitutionalization of low care nursing home residents, on the Medicaid population in RI nursing homes. She is also funded as an Investigator (Kasper and Freedman, Co-PIs)to develop measures of unmet need and other consequences of disability in the elderly population for the National Survey on Aging and Health, funded by the National Institute on Aging. Dr. Allen's second research interest is in the arena of women's health and well-being. Her work in the Veterans Administration focuses on the reintegration of female veterans following deployment to Iraq, with an emphasis on the impact of deployment stressors on the resumption of social roles. Finally, Dr. Allen studies quality of life issues among female cancer survivors with funding from the National Cancer Institute.

Institutions

BU

Research Description

Susan M. Allen, PhD, is a sociologist and health policy researcher who studies the community-based long term care of people with chronic conditions and disabilities. Her research focuses on both paid home care as well as home care provided by family members. She has identifed factors related to unmet need for help at home, and has also identified the immediate consequences of unmet need, such as falling and inability to follow physician-prescribed diets. Dr. Allen recently investigated the influence of unmet need for care in the home on subsequent hospitalizaiton using national survey data linked to Medicare claims data, and found that self-report of unmet need is predictive of hospitalization over a three month follow up period, thus linking the quality of home care with acute care utilization. Within the context of this same study, funded by the National Institute on Aging, she also studied the characteristics of family caregivers that are predictive of caregiving resilience over time and found that current trends in caregiving networks, e.g., an increase in the proportion of caregivers who are men and also in the proportion of caregivers who provide care without the support of secondary caregivers, are associated with caregiving transitions to nursing homes as well as to no care. Dr. Allen has also studied the use of assistive technology and home accommodations as home care resources, and found that use of mobility equipment and home accommodations can reduce levels of human help for some subgroups of the disabled population. Dr. Allen conducts research on people with disabilities for the Rhode Island Department of Human Services, and is currently consulting on the rebalancing of Medicaid long term care to include expanded options for care in the community.
Dr. Allen is also interested in the psychosocial outcomes of women with cancer and is concluding an NCI study investigating phsyican practices regarding communication of the risk of infertility associated with cancer treatment among premenopausal women. Her interest in the health and well being of younger women is a theme in her current VA study investigating the challenges women face following deployment to Iraq as they attempt to resume their social roles.

Grants and Awards

FIRST Award from the National Institute on Aging, 1994-2000
Manning Assistant Professor, Endowed Chair, 1997-1998
Fellow, Salzburg Seminar, Europe's leading forum for promoting global dialogue on issues of pressing international concern, Salzburg, Austria, 1998-present
Fellow, Gerontological Society of America, Social and Behavioral Sciences Section, 2002-present
Outstanding Faculty Mentor Award, Brown University/Women & Infants Hospital National Center of Excellence in Women's Health (Maureen Phipps, MD, PI), US DHHS Office of Women's Health, 2008.

Affiliations

The Gerontological Society of America
Association for Health Services Research
American Public Health Association
American Association of University Women
American Association for the Advancement of Science

Funded Research

Current

Investigator. (Kasper and Freedman, Co-PIs) National Study of Health and Aging(formerly National Long Term Care Survey). US National Institute on Aging. 2009-2011

Co-Principal Investigator (Peter Friedman, MD, PI). HSR&D Research
Enhancement Award Program (REAP): Center on Systems, Outcomes and Quality in Chronic Disease and Rehabilitation. US Department of Veterans Affairs,2008-2012

Investigator. (Verhoeck-Oftedahl, PI) Improving Estimates of Elder Abuse in RI. R21 from the National Institute on Aging. 2007-2009

Investigator (Resnik, PI). Pilot Studies of the Community Reintegration of OEF/OIF Veterans. Veterans Health Administration. 2007-2009

Completed

Investigator (Wasserman, PI) Older Latina Women, Marital Status and Cancer Screening. R03 from the National Institute on Aging.2007-2009

Principal Investigator. Addressing fertility issues with female cancer patients. R21 from the National Cancer Institute, 2006-2009
Co-Principal Investigator (Peter Friedman, MD, PI). HSR&D Targeted Research Enhancement Program (TREP): Center on the Integration of Pychosocial and Health Services in Chronic Disease and Disability. US Department of Veterans Affairs, 2004-2008

Investigator (Melissa Clark, PI). Regular mammography screenings: The realities for women with disabilities. Grant from the Susan G. Komen Foundation, 2005-2008

Principal Investigator. Unmet need: An acute/chronic care link. R01 from the National Institute on Aging, 2004-2008

Investigator (Linda Resnik, PI). Culture and mobility device use in older adults. R21 from the National Institute on Aging, 2005-2008
Principal Investigator. Research support for 6 month planning phase of the RI Real Choice System Transformation Project. Contract from RI DHS with funding from the U.S. Center for Medicare and Medicare Services. 2007

Principal Investigator. Implementation of a needs assessment survey for community-dwelling elderly on Medicaid. Contract from the Rhode Island Department of Human Services, with funding from the U. S. Center for Medicare and Medicare Services. 2006-2007

Principal Investigator. Development of a needs assessment survey for community-dwelling elderly on Medicaid. Subcontract from EDS for the Rhode Island Department of Human Services. 2006-2007

Principal Investigator. Identifying the unmet service needs of soldiers returning from warfare. A pilot study funded under the Pathways to Recovery Initiative by the US Department of the Interior, 2004-2005

Principal Investigator. Access to Affordable Health Insurance in RI, State planning grant to extend health insurance coverage to the uninsured population of RI. Subcontract from Rhode Island Department of Health and Human Services, funded by a grant from the US Health Resources and Service Administration, 2004-2005

Principal Investigator. Rethinking chronic and long-term care in Rhode Island: A concept paper. Contract from RI Department of Health and Human Services, Medicaid Program, 2004

Principal Investigator. Rhode Island Access Project. Subcontract from Rhode Island Department of Health and Human Services, funded by a grant from the Robert Wood Johnson Foundation. 2002-2005

Principal Investigator. When your health plan fails: The impact of Harvard Pilgrim Health Care closing on Rhode Island patients and providers. Grant from the Robert Wood Johnson Foundation, 2000-2002
Principal Investigator. Development of a chartbook for special needs populations in Medicaid managed care. Subcontract from the Center for Health Care Strategies under a grant from the Robert Wood Johnson Foundation, 1999-2000

Principal Investigator. Receiving help at home: The interplay of human and technological assistance. Grant awarded under the Robert Wood Johnson Foundation's Home Care Research Initiative, 1998-2000
Principal Investigator. Springfield study of populations with disabilities: Part II. Grant from the Robert Wood Johnson Foundation, 1995-1998

Principal Investigator. Home care training for younger breast cancer patients. R01 from the National Cancer Institute, 1994-2000

Principal Investigator. Marital gender roles and the dynamics of spousal care. FIRST Award from the National Institute on Aging,1994-2000

Co-Principal Investigator (Vincent Mor, PhD, PI). Springfield study of populations with disabilities: Part 1. Grant from the Robert Wood Johnson Foundation, 1993-1995

Co-Principal Investigator (Frances Goldscheider, PhD, PI). Traditional gender roles and spousal caregiving. Award from the Milbank Memorial Fund, Milbank Health Policy Reviews: Households and Health Services, 1990-1991

Teaching Experience

Disability over the life course

Survey research in health care

Comparative Health Care systems

Courses Taught

  • Comparative Health Care Systems (PHP1100)
  • Survey Research in Health Care (PHP1320)

Selected Publications

  • Lima J, Allen SM. The Availability of Care for People with Chronic Conditions in Late Middle Age. Youngstown, New York: Cambria Press, Inc, 2008. (2008)
  • Plow, M, Resnik, L, Allen SM Exploring Physical Activity Behaviour of Persons with Multiple Sclerosis. Submitted to Disability and Rehabilitation Research, in press. (2008)
  • Resnik L, Allen SM, Isenstadt D, Wasserman M, Iezzoni L. Perspectives on the use of mobility equipment in a diverse population of seniors: Implications for interventions. Journal of Disability and Health, in press. (2008)
  • Duffy C, Allen, SM. Medical and psychosocial aspects of fertility after cancer. The Cancer Journal, in press. (2008)
  • Miller E, Allen SM, Mor V. Navigating the labyrinth of long-term care: Shoring up informal caregiving in a home- and community-based world. Aging and Social Policy, in press. (2008)
  • Lima J, Allen SM. (2008) Spousal caregiving in mid-life versus older ages: Implications of work and family obligations. Journal of Gerontology: Social Sciences 63B(4): S229-S238. (2008)
  • Resnik L, Allen SM . (2007) Challenges in community reintegration of injured service members. Journal of Rehabilitation Research and Development 44(7): 991-1006. (2007)
  • Allen SM, Resnik L, Roy J. (2006) Promoting independence for wheelchair users who live alone: The role of home accommodations. The Gerontologist 46(1): 115-123. (2006)
  • Resnik L, Allen SM. (2006) Racial disparities in the use of assistive devices for mobility. Journal of Aging and Health 18(1): 106-124. (2006)
  • Allen SM, Foster A, Berg K (Winter, 2005). Canes, crutches and home care: The interplay of human and technological assistance. Clinical Notes. (2005)
  • Resnik L, Lapane K, Allen SM (2005). Assistance with personal care for people with mobility impairments: The impact of obesity. Obesity Research 13:1307-1310. (2005)
  • Duffy CM, Allen SM, Clark MA (2005). Discussions regarding reproductive health for young women with breast cancer undergoing chemotherapy. Journal of Clinical Oncology 23(4): 766-773. (2005)
  • Hyatt R, Allen SM (2005). Disability as a "family affair": Parental disability and childhood immunization. Medical Care 43(6): 6000-6006. (2005)
  • Allen SM, Resnik L (2004). Supporting independence for wheelchair users who live alone in the community. American Society on Aging Newsletter 11(3). (2004)
  • Marcellini F, Allen SM, Julie L (2004). Personal behaviour and sustainable transport: Mobility problems and needs of older people in Europe and in USA. Prepared for project STELLA, with funding from the European Commission and the US National Science Foundation. (2004)
  • Allen SM. Personal care attendants. Entry in The Encyclopedia of Disability. Albrecht G., (Ed.). Sage Publications, 2004. (2004)
  • Allen SM (2004). Rethinking long term care in Rhode Island: A vision for the present and future. A concept paper commissioned by ACS, Inc. for the RI Medicaid program. (2004)
  • Allen SM (2004). When the system fails. Book review of L. Iezzoni's When Walking Fails. Health Affairs 23(5). (2004)
  • Allen SM, Resnik L (2004). Invited commentary on Watson et al. Gait aid use by ambulatory older people in a residential setting: A descriptive exploration. International Journal of Therapy and Rehabilitation 11(1). (2004)
  • Allen SM, Ciambrone D (2003). Community care for people with disability: Blurring boundaries between formal and informal caregivers. Qualitative Health Research 134(2): 207-226. (2003)
  • Berg K, Hines M, Allen SM (2002). Wheelchair users at home: Few home modifications and many injurious falls. American Journal of Public Health 92(1): p.48. (2002)
  • Allen SM, Shah AC, Nezu AM, Nezu CM, Ciambrone D, Hogan J, Mor V (2002). A problem-solving approach to stress reduction among younger women with breast cancer: A randomized controlled trial. Cancer 94(12). (2002)
  • Allen SM (2001) Missed connections: Hard of hearing in a hearing wold. Book review. Social Forces 79(4): 1548-1550. (2001)
  • Allen SM, Foster A, Berg K (2001). Receiving help at home: The interplay of human and technological assistance. Journal of Gerontology: Social Sciences 56B(6): S374-S382. (2001)
  • Allen SM, Petrisek A, Laliberte L (2001). Problems in communication between physicians and younger women with breast cancer. Critical Public Health 11(1). (2001)
  • Allen SM, Hogan D. The demography of disability. Chapter in The International Encyclopedia of Social and Behavioral Sciences. Smelser and Baltes (Eds). Pergamon Press, 2001. (2001)
  • Fennell M, Allen SM, Laliberte L. Community-based service providers for people with chronic care needs: Survival in an uncertain environment. Research in Social Problems and Public Policy, Volume 8, JAI Press, 2001. (2001)
  • Ciambrone D, Allen SM. Men as caregivers to the chronically ill: The case of cancer. Chapter in, The Male Caregiver. Kramer and Thompson (Eds) New York, Springer Publishing Co., 2001. (2001)
  • Lima J, Allen SM (2001). Targeting risk for unmet need: Not enough help versus no help at all. Journal of Gerontology: Social Sciences 56B(5): S302-S310. (2001)
  • Allen SM, Webster P (2001). When wives get sick: Pre-illness predictors of husbands' contribution to household work. Gender and Society 15(6): 898-916. (2001)
  • Allen SM (2001). Canes, crutches and home care services: The interplay of human and technological assistance. A Policy Brief of the Home Care Research Initiative: A Program of the Robert Wood Johnson Foundation. (2001)
  • Allen SM, Croke A (2000). The Faces of Medicaid: Challenges of Caring for People with Chronic Illnesses and Disabilities (Chartbook). Princeton, NJ: Center for Health Care Strategies, Inc. (2000)
  • Allen SM, Ciambrone D, Welch L (2000). Stage of life course and social support as a mediator of depressive mood among persons with disability. Journal of Aging and Health 12(3): 318-341. (2000)
  • Baer H, Allen SM, Braun L (2000). Knowledge of human papillomavirus infection among young adult men and women: Implications for health education." Journal of Community Health 25(1): 67-78. (2000)
  • Allen SM, Buechner J, Griffin J, Jacobson R, Leddy T, Payne C, Spinelli F, Vivier P, White B (2000). Design of a Health Indicator System: A "How-To" Manual for State Medicaid Programs. RI Department of Human Services, for the Center for Health Care Strategies. (2000)
  • Allen SM, Goldscheider F, Ciambrone DA (1999). Gender roles, martial intimacy, and nomination of spouse as primary caregiver. The Gerontologist 39(2), 150-158. (1999)
  • Mor V, Allen SM (1998). Opportunities and dangers in the changing health care system. Medicine and Health/Rhode Island 81(3): 87-90. (1998)
  • Allen SM, Mor V (1998). Unmet need and its consequences: Contrasts between older and younger adults with disability. Medical Care 35(11): 1132-1148. (1998)
  • Allen SM. Converging trends. In, Allen S, Mor V. (Eds.) Living in the Community with Disability: Service Needs, Use and Systems. New York, NY: Springer Publishing Company, 1998. (1998)
  • Allen SM. People and systems: Assessing the fit. In, Allen S, Mor V. (Eds.) Living in the Community with Disability: Service Needs, Use and Systems. New York, NY: Springer Publishing Company, 1998. (1998)
  • Allen SM, Mor V. (Eds.) Living in the Community with Disability: Service Needs, Use and Systems. New York, NY: Springer Publishing Company, 1998. (1998)
  • Banaszak-Holl J, Allen SM, Mor V, Schott T (1998). Organizational characteristics associated with agency centrality in community care networks. Journal of Health and Social Behavior 39(4): 368-385. (1998)
  • Allen SM, Fennell M, Laliberte L (1998). The impact of managed care on chronic care agency providers. Medicine and Health/Rhode Island 81(3): 87-90. (1998)
  • Petrisek A, Laliberte L, Allen SM, Mor V (1997). The treatment decision-making process: Age differences in a sample of women recently diagnosed with nonrecurrent early stage breast cancer. The Gerontologist, 37(5): 598-608. (1997)
  • Allen SM, Mor V. Unmet need in the community: The Springfield Study. In, Isaacs S and Knickman J (Eds.) To Improve Health and Health Care: The 1997 Robert Wood Johnson Anthology. San Francisco, CA: Jossey Bass Inc., 1997. (1997)
  • Houts P, Nezu AM, Allen SM, Nezu CM, Harwood K (Eds.) (1996). Home Care Guide for Women with Breast Cancer. Pennsylvania State University College of Medicine. (1996)
  • Mor V, Wood M, Guadagnoli E, Allen S. The impact of short term case management on cancer patients' concrete needs and quality of life. In Albrecht G (Ed), Advances in Medical Sociology: Volume VI, Case/Care Management. Greenwich CT: JAI Press, Inc. 1995. (1995)
  • Mor V, Allen SM. Hospice. In Maddox GL (Ed), The Encyclopedia of Aging (2nd Edition). New York, NY: Springer Publishing Company, 1995. (1995)
  • Allen SM, Mor V, Fleishman J, Piette JD (1995). The organizational transformation of advocacy: Growth and development of AIDS community-based organizations. AIDS and Public Policy,10(1): 48-59. (1995)
  • Allen SM (1994). Gender differences in spousal caregiving and unmet need for care. Journal of Gerontology: Social Sciences, 49(4):S187-S195. (1994)
  • Mor V, Allen SM, Malin M (1994). The psychosocial impact of cancer on older versus younger patients and their families. Cancer, 74: 2118-2127. (1994)
  • Brown P, Allen SM (1994). The toxic waste movement: A new type of activism. Society and Natural Resources, 7:269-287. (1994)
  • Mor V, Fleishman JA, Allen SM, Piette JD. Networking AIDS Services. Ann Arbor: Health Administration Press, 1994. (1994)
  • Mor V, Malin M, Allen SM (1994). Age differences in the psycho-social problems encountered by breast cancer patients. Journal of the National Cancer Institute Monographs, 16:191-197. (1994)
  • Allen SM, Mor V, Raveis V, Houts P (1993). Measurement of need for assistance with daily activities: Quantifying the influence of gender roles. Journal of Gerontology: Social Sciences, 48(4): S204-S211. (1993)
  • Mor V, Fleishman JA, Piette JD, Allen SM (1993). Developing AIDS community service consortia. Health Affairs, 12(1): 186-199. (1993)
  • Allen SM, Fleishman J (1992). Problems encountered in home health service delivery to persons with AIDS. Home Health Services Quarterly, 13(1/2): 129-159. (1992)
  • Mor V, Allen SM, Siegel K, Houts P (1992). Determinants of need and unmet need among cancer patients residing at home. Health Services Research, 27(3): 337-360. (1992)
  • Mor V, Masterson-Allen S, Houts P, Siegel K (1992). The changing needs of cancer patients at home: A longitudinal view. Cancer, 69:829-8383. (1992)
  • Fleishman JA, Mor V, Piette JD, Allen SM (1992). Organizing AIDS service consortia: Lead agency identify and consortium cohesion. Social Service Research, 66(4): 547-570. (1992)
  • Masterson-Allen S, Mor V. Quality of life research in hospice care. In Osoba D (Ed.), The Effect of Cancer on Quality of Life. Boca Raton, CRC Press, Inc., 1991. (1991)
  • Masterson-Allen S, Brown P (1990). Public reaction to toxic waste contamination: Analysis of a social movement. International Journal of Health Services, 20(3): 485-500. (1990)
  • Mor V, Masterson-Allen S, Goldberg R, Guadagnoli E, Wool M (1990). Pre-diagnostic symptom recognition and help seeking among cancer patients: Implications for educational intervention. Journal of Community Health, 15(4):253-266. (1990)
  • Mor V, Masterson-Allen S (1990). A comparison of hospice care versus conventional care of the terminally ill cancer patient. Oncology, 4(7): 85-91. (1990)
  • Mor V, Masterson-Allen S (1990). Rhode Island patients undergoing outpatient chemotherapy: How are they managing at home? Rhode Island Medical Journal, 73: 457-463. (1990)
  • Mor V, Murphy J, Masterson-Allen S, Willey C, Razmpour A, Jackson ME, Greer D, Katz S (1989). Risk of functional decline among well elders. Journal of Clinical Epidemiology, 42(9): 895-904. (1989)
  • Mor V, Guadagnoli E, Silliman RA, Weitberg A, Glicksman A, Goldberg R, Cummings F, Masterson-Allen S. Influence of old age, performance status, medical, and psychosocial status on cancer patient management. In Yancik R and Yates JW (Eds) Cancer in the Elderly: Approaches to Early Detection and Treatment. New York, NY: Springer Publishing Company, 1989. (1989)
  • Mor V, Greer DS, Masterson-Allen S. The National Hospice Study. Entry in The Encyclopedia of Death. Phoenix: The Oryx Press, 1989. (1989)
  • Mor V, Guadagnoli E, Masterson-Allen S, Silliman R, Weitberg A, Glicksman AS, Rosenstein R, Cummings FJ, Goldberg RJ, Fretwell MD (1988). The Brown University Cancer and Aging Study: A statewide cooperative investigation. Rhode Island Medical Journal, 71(10):379-386. (1988)
  • Wachtel T, Masterson-Allen S, Reuben D, Goldberg R, Mor V (1988). The end stage cancer patient: Terminal common pathway. The Hospice Journal, 4(4): 43-80. (1988)
  • Mor V, Guadagnoli E, Masterson-Allen S, Silliman R, Glicksman AS, Cummings FJ, Goldberg RJ, Fretwell MD (1988). The relationship between extent of disease and age at initial diagnosis. Journal of the American Geriatrics Society, 36: 873-876. (1988)
  • Mor V, Masterson-Allen S. The hospice model of care for the terminally ill. In Goldberg RJ (Ed) Psychiatric Aspects of Cancer. Basel, Switzerland, Karger Press, 1988. (1988)
  • Mor V, Masterson-Allen S (1988). The hospice model of care for the terminally ill. Advances in Psychosomatic Medicine 18: 119-34. (1988)
  • Masterson-Allen S, Mor V, Laliberte L (1987). Turnover in National Hospice Study sites: A reflection of organizational growth. The Hospice Journal, 3(2/3): 147-164. (1987)
  • Masterson-Allen S, Mor V, Laliberte L. Turnover in National Hospice Study sites: A reflection of organizational growth. In Finn Paradis L. (Ed.) Stress and Burnout Among Individuals Caring for the Terminally Ill. New York, NY: Haworth Press, 1987. (1987)
  • Mor V, Masterson-Allen S. Hospice Care Systems: Structure, Process, Costs and Outcome. New York, NY: Springer Publishing Company, 1987. (1987)
  • Masterson-Allen S, Mor V, Lance MP (1987). Physician screening practices and colorectal cancer screening prevalence among the Rhode Island population. Rhode Island Medical Journal, 70(5): 217-221. (1987)
  • Mor V, Masterson-Allen S, Goldberg RJ, Cummings FJ, Glicksman AS, Fretwell MD (1986). Relationship between age at diagnosis and treatments received by cancer patients. Geriatrics Digest, 4:25-26. (1986)
  • Masterson-Allen S, Mor V, Laliberte L, Monteiro L (1985). Staff burnout in a hospice setting. The Hospice Journal, 1(3): 1-15. (1985)
  • Masterson-Allen S, Laliberte L, Wright SM, Hepburn K, Veale-Danner W, Mor V, Morris JN (1985). Terminally ill patients' and families' responses to participation in a research study. Evaluation and the Health Professions, 8(1): 83-92. (1985)
  • Mor V, Masterson-Allen S, Goldberg RJ, Cummings FJ, Glicksman AS, Fretwell MD (1985). Relationship between age at diagnosis and treatments received by cancer patients. Journal of the American Geriatrics Society, 33: 585-589. (1985)