For Researchers

What is RI-CART?

The Rhode Island Consortium for Autism Research and Treatment (RI-CART) is a statewide, population-based repository of individuals on the autism spectrum and their families whose purpose is to foster research in the causes, treatments and outcomes of autism and related neurodevelopmental disorders.  RI-CART began recruitment in June 2013 and is funded by the Simons Foundation Autism Research Initiative (SFARI).

What types of information does RI-CART collect?

RI-CART collects family demographics, family medical history, as well as developmental, mental health, and services history from participants. RI-CART also encourages participants to provide biosamples (blood or saliva) and their complete medical records. Finally, RI-CART administers several assessments to repository members:

  • Autism Diagnostic Observation Schedule, 2nd edition (ADOS-2)
  • Vineland Adaptive Behavior Scales, 2nd edition (VABS-2)
  • Social Responsiveness Scale, 2nd edition (SRS-2)
  • Kaufman Brief Intelligence Test  (KBIT-2), for ages 4 years and above

As of November 2017, the following additions and changes to the assessment protocol have been made:

  • Peabody Picture Vocabulary Test (PPVT), now included for all ages
  • Vineland Adaptive Behavior Scales, 3rd edition (Vineland-3), replacing the VABS-2

You can learn more about the forms and assessments RI-CART registry members complete HERE.

Who is in the RI-CART repository?

As of Fall 2017, RI-CART has over 1,500 participants. The majority are between ages 5 and 15; however, our participants range in age from 21 months to 68 years. 76% of RI-CART participants are male and 24% are female; this 4 to 1 ratio aligns almost exactly with current ASD gender prevalence estimates. RI-CART participants come from diverse ethnic and socioeconomic backgrounds, and reflect the considerable variation in symptomology and adaptive ability seen amongst individuals on the autism spectrum. 

Can I use RI-CART collected data in my study? Can I use RI-CART subjects for additional studies? How can I request to use RI-CART data or participants as subjects in my study?

We welcome researchers from all disciplines who are interested in studying ASD to use RI-CART collected data in their own research or to recruit the well characterized subjects into new studies.  Depending on the nature of data use requests and/or participant recruitment requests, there may be costs associated with access to the RI-CART data and cohort. Please complete the application to use RI-CART collected data using the following link:  https://redcap.lifespan.org/redcap/surveys/?s=h6VWcADEPK

Can I collaborate with RI-CART on my new or ongoing research project?

We welcome researchers from all disciplines that are interested in collaborating with RI-CART, or incorporating RI-CART data into an ongoing project. To discuss a possible collaboration, please contact RI-CART co-investigator Dr. Giulia Righi at giulia.righi@lifespan.org.

Does RI-CART provide financial support to researchers?

Unfortunately, RI-CART is unable to provide fellowships or funding opportunities to collaborating researchers at this time.

How can I get involved in RI-CART?

If you are interested in using RI-CART data for your study or recruiting participants for your study using the RI-CART repository, please follow the directions included above. If you have additional questions about the RI-CART repository, please contact Dr. Giulia Righi at giulia.righi@lifespan.org.

If you are interested in learning more about volunteer, internship, and employment opportunities with RI-CART, please get in touch! You can contact us at RICART@lifespan.org